Patients and members of the public

We help patients find the right routes to share their invaluable ideas and insights with people that turn great ideas into real health solutions

Get involved

We help patients find the right routes to share their invaluable ideas and insights with people that turn great ideas into real health solutions.

If you have a particular challenge you want to explore with us, Get in touch. We take your insight and share the common themes with innovators to help them pinpoint helpful solutions.

We’d also love to hear from you if you have any ideas that could help deliver better healthcare services in the region.

RAREfest20 Rare disease insight survey

We have partnered with Cambridge Rare Disease Network (CRDN) to gather insight into what it is like to live with a rare disease. One of our key priorities is to support the development of innovations which improve the everyday lives of those living with rare diseases.

That is why we launched a new survey at RAREfest20 to gather insights from people living with rare diseases, including families and carers, so we can work with the innovation community to develop innovations to help solve some of your everyday challenges.

Take the survey by 4 January 2021

Becoming a patient representative

If you are interested in becoming a patient representative, we’d love to hear from you — get in touch.

Get in touch

Contact us to see how you can get involved with our programmes

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