Submissions to this competition will be judged and scored by an expert panel, and the five highest scoring innovations will be invited to present their solution at Cambridge Rare Disease Network’s (CRDN) RAREsummit on 7 October 2021. RAREsummit will be attended by over 300 patients, advocates, healthcare professionals, investors, researchers, academics and leaders in the rare disease space; this is a unique opportunity to gain feedback, build advocacy and identify next steps for you and your healthcare innovation.
Submit your innovation before midday on 7 September 2021 using the link above to enter this competition.
One in 17 people will develop a rare disease at some point in their lives — that’s 3.5 million in the UK alone and 350 million worldwide. Most of these diseases manifest in early childhood and many are life-limiting conditions.
Cambridge Rare Disease Network brings together stakeholders from research, industry, business, healthcare and patient advocacy groups in a spirit of collaboration and understanding; providing opportunities to share, learn, engage and be innovative together to improve the lives of those affected by rare disease.
At Eastern AHSN we have a wealth of expertise in helping innovators turn their ideas into positive health impact. We know that great ideas only make an impact when they are put into practice; which is why we are supporting this unique opportunity to identify innovations than can have a dramatic impact on the millions of people living with or supporting someone with a rare disease.
10 year old Tristan has a rare disease called Russell-Silver Syndrome. The video below shares a glimpse of Tristan’s story. We are grateful to Tristan and his family and CRDN for sharing this; you can read more about CRDN on their website, and learn about their work with Tristan and families like his here.
One of Eastern AHSN’s priorities is to support the development of innovations which improve the everyday lives of people living with rare diseases.
Through a partnership with CRDN to sponsor and participate in Rarefest20 (CRDN’s biennial conference and exhibition), Eastern AHSN was able to survey and gather lived experiences and insights to help understand more about the challenges faced by people living with rare diseases.
The survey ran from 22 November 2020 to 6 January 2021 and achieved 37 individual responses. From these responses, we’ve identified three significant healthcare challenge statements that address challenges commonly face by faced by people living with rare diseases and their families.
CRDN’s RAREsummit21 is the infrastructure that unites patients, advocates, experts and leaders to address the challenges faced by people affected by rare diseases.
On 7 October 2021, CRDN will hold their 5th RAREsummit — a flagship event that aims to raise awareness of rare conditions and their impact, showcase exemplars of impactful collaboration, bring stakeholders together to drive partnering opportunities, share knowledge and skills and improve the lives of rare disease patients.
This year’s event is expected to attract 300+ biotechnology, pharma and startup leaders, innovators, patients and patient group CEOs, healthcare professionals, policy-makers, CROs, researchers, investors and students.
If you’ve got a great idea or innovation that responds to one (or more) of our challenge statements, we still want to hear from you via the online engagement form below. However, now that the deadline has passed we cant consider any more entries for inclusion at RAREsummit21.
If you have any questions or would like to get in touch please email [email protected], including ‘Innovation challenge: Rare diseases’ in the subject line.