We work closely with patients and the general public – people like you – to make sure your voices inform and shape what we do. With your insight into experiences of care we can support innovation to improve services for patients faster.
Our aim is for people with lived experience (patients and carers or those with other relevant experience) to be involved in each area of our work. This process starts with the innovations selection process, during which we ensure patient representation on the panel that reviews and provides recommendations on the innovations we support.
Patients were involved in the decision-making process to inform how their data is used for patient or societal benefit in Gut Reaction – the Health Data Research Hub for inflammatory bowel disease.
Find out more about how the data hub worked with Crohn’s & Colitis UK and its Patient Advisory Committee to ensure that patient co-design was at the heart of determining how requests to access the growing dataset were managed.
Find out more here